My journey with adenomyosis

If you’re reading this, chances are you’ve either heard the term “adenomyosis” for the first time, or you’re trying to make sense of something that has affected your health—perhaps for some time. I know that feeling all too well. It wasn’t until I was diagnosed with this condition that I truly understood how it could alter not only your physical well-being but your entire sense of self.

Adenomyosis is a relatively misunderstood and often misdiagnosed condition that affects the uterus. In simple terms, it occurs when the tissue that normally lines the inside of the uterus (endometrium) begins to grow into the muscular walls of the uterus. This can lead to a variety of symptoms, including chronic pelvic pain, heavy menstrual bleeding, bloating, and even painful intercourse. For some, it can be a silent struggle; for others, it’s a constant battle to manage daily life.

When I first experienced symptoms—severe cramps that didn’t feel like anything I had ever known, unexplained fatigue, and heavy bleeding that seemed to have no end—I thought it was just another part of being a woman. But as I sought answers, I began to realize how much more complex my condition was.

In this blog, I’ll be sharing what I’ve learned about adenomyosis, my personal experiences, and the ongoing journey of living with a chronic illness that doesn’t always have clear answers. Whether you’re newly diagnosed or just curious, I hope my story can offer some insight, a sense of solidarity, and most importantly, a reminder that you’re not alone in this.

With love,

Neusa